The truth is that none of us know how long we will be here. We aren't supposed to know. How could we grow and learn if we were constantly checking our watch for "our time"? This would sway our decisions, possibly put ourselves in reckless situations, or cause us not to live to our potential … Continue reading Make Memories for a Lifetime
There is nothing better than having friends who are also family. When you are differently-able, having what would be considered traditional friendships can be very difficult. Pheonix relied on his parents and care takers for all of his mobility and health needs. Other than walking in an adapted walker, he could not be somewhere without … Continue reading Cousins are Forever Friends
We learned early on that Pheonix was happiest when we allowed him to live like he didn't have physical limitations. He didn't want to be handled like he was medically fragile. His mind was sharp and his spirit was the same as any little boy. He craved excitement and thrived on chaos. If he could … Continue reading Fishing, Hiking, ADVENTURE!
It is not unusual for loved ones to honor those who have passed before us by building memorials or creating funds to help others in their name. We are no different, but our goal is not only to honor Pheonix for his extraordinary spirit, but to raise awareness for other children with limited physical abilities … Continue reading Take Me Out to The Ballgame!
I started this blog to hopefully inspire others through stories and uplifting revelations brought on from the life of our son. I sometimes have tears in my eyes as I write, but I always read the final blog and it helps me center myself and focus on the good. I hope that others read it … Continue reading Lightning Bugs and Butterflies
Traditions are pretty common in families. You get together at the same place for holidays or you look to the same people for guidance and support. What happens when one of the members of the unit is no longer here in physical form? Do traditions stop? Do you stop looking to them for strength? Do … Continue reading Continue Traditions
I ventured into the basement on the evening we were having people over to play cards for my birthday to look for a table cover. Having an October birthday is just another great excuse to get out the Halloween decorations. I jumped up into the crawl space and dropped out onto the floor a box … Continue reading Always the Hero
By far the most unusual thing Pheonix ever did was get upset when school would be cancelled for snow or cold. Most kids are thrilled if they get the day off from school. Pheonix would just have this look of serious disappointment that he wasn't getting to go that day. Why did he have this … Continue reading NO Snow Days Please!